We currently have plans to expand our Arts and Craft Bag project to support babies and teenagers and we’re also building on our experience with the brochures to develop other literature and support networks.
We are looking at creating sensory and heuristic bags for babies undergoing bone marrow transplants. Infection control is even more important with these bags and we are exploring ways of creating bags that be scrupulously cleaned multiple times. Ideas for this include the use of oilcloth bags as well as developing appropriate contents.
We are looking at ways we can support the teenage units, specifically teenagers in isolation. We are keen to carry through our art and crafts theme rather than looking at electronic means of boredom busting and distraction. There are already fantastic charities that support teenagers with game consoles and similar devices and we’re looking for ways to support their practical creativity.
Peer-to-peer parental support
We are looking at how we can create a nationwide support network for parents of children and young people with cancer, at all stages of treatment and including those families that are sadly bereaved. This is a sensitive area and one that’s going to take some small steps before it’s ready to go live but be assured that we’re working on it!
We have two ideas for books.
One is to give a voice to children with cancer and their families. We have an idea to collate a piece of writing from each of several children at different stages of treatment and for the parents of those children to write either an open letter to their child, or introduce their child and a little bit of their own cancer story. The idea is that we would publish the book to general sale, hopefully opening up a dialogue and giving the general public a deeper understanding of life as a child with cancer.
Leanne also, at some point, intends to write Fletcher’s story.